Lone Cyprus

Lone Cyprus

Tuesday, July 21, 2009

Fabulous talent from a fabulous friend

This is a recent blog entry by my friend, Nicole. She's a fabulously talented photographer and is using her talent and big heart to help me! Please, check it out!!


Photography for a Cause | Beth
Beth was the kind of girl who was everyone’s friend. How could you not like Beth? She had a contagious laugh, a giving spirit and the kindest heart. When I met her, I was a freshman at Indiana State University, and Beth was a senior. She took me under her wing for the short time we attended ISU together. We went on mission trips together, did women’s Bible studies as well as hung out and laughed about things only we thought were funny. So after graduation had come and gone, I figured it would be unlikely I’d ever see her again.

Then randomly, while shopping in Evansville, I saw from a distance someone who looked awfully familiar. When I finally realized it was Beth, I didn’t hesitate to give her a hug. From that point forward, we decided to keep in touch. Of course, Facebook helped facilitate that.

And it was also Facebook that was the bearer of the bad news. I’ll never forget reading Beth’s heartfelt note on Facebook that spoke of her newly diagnosed, terminal disease. My heart sunk with every word I read. But through her words, Beth showed that she was strong and she was going to fight this head on.

And I’ve decided I’ll help her fight this fight Scleroderma, too. I am offering a headshot night on August 4 at 5:30 p.m. at The Old Courthouse in downtown Evansville. The cost is a $10 donation to Beth’s transplant fund, and you get the images emailed directly to you for personal use such as on blogs, resumes and web sites such as Facebook and MySpace, just to name a few. Everyone who participates in the headshot event will be entered to win a portrait session from me as well as will get the DVD of images for free (a $350 value!).

I offered to do a photo shoot for Beth to help her raise awareness of her disease and how others can help make a difference. And really, what girl doesn’t want pretty pictures of herself? Here are a few of our favorites:

(You'll need to go to the blog to check out the pics for now! http://www.nicoleneffphotography.com/blog/?p=1320
You should go for sure!)

I also asked Beth to let my blog readers know a little bit about what she’s going through and how you can help. Here is her story, in her own words:

My name is Beth and I’m 30 years old. I have a terminal disease called Scleroderma. Scleroderma is an autoimmune disorder that attacks the tissues in your body and causes you to overproduce collagen. When first diagnosed, I had what my doctors and specialists considered a less severe form that caused me discomfort but allowed me to go on with life normally. However about a year ago my condition worsened. I was then diagnosed with the most severe form of Scleroderma. This affected my lungs and reduced their function as well as affected major areas of skin on my body. It also causes me to be very fatigued. Due to this I am unable to work and without insurance.

Most people with this form of Schleroderma only live about 5 years. This is my fifth year since diagnosis. There is no cure for this rare disorder. However, there is one thing that I can do. I have become eligible for a stem cell transplant. This procedure will essentially reboot my immune system using my own stem cells and allowing my body to go back to a more normal state. Then I can hopefully return to the Beth that once was. However, this procedure costs $100,000 and is being paid out of pocket. My family and friends have been working non-stop to raise money for this procedure. Also, the procedure is being performed in Chicago and I will be there for 2 months with my mom incurring the expense of the stay.

So, I need your help. Please check out my website to donate and learn more about my journey and the fundraising efforts at: www.aplanforbethann.com
Also, it’s very helpful to forward my website on to all you know to help spread awareness. Thank you!

Beth

You can also order prints from Beth’s session by going to www.nicoleneffphotography.com/clients, creating an account and then entering the password “Beth”. All proceeds from print sales will go directly to help Beth pay for her transplant.
So whether you choose to get your headshot, purchase a print or donate directly to Beth’s fund by going to www.aplanforbethann.com, you’ll be helping save a life. My friend’s life.

Nicole Neff

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