I've gone back and forth a lot and struggled with the decision to start a blog. I worried about having nothing to say or seeming arrogant, assuming people would want to read about what I think and do. The truth is, never in my life have I felt like I had more to say. Maybe none of it will matter to anyone but me, but I can't escape the desire to write it all down. On top of this, I have found myself in recent months scouring the internet for websites and blogs of other people with scleroderma. I just wanted to know their stories. I wanted to know what happened to them, how they dealt with it, what they did about it. Each time I read something I found myself wanting to know more, wishing I could get more details or more explanation. So, I figure here's MY chance to do that for someone else. I can talk about the disease or the transplant or the fact that I had fillings done in my teeth today and still managed to eat three donuts! I'm not sure the donut info will help anyone, except maybe to show that things may not be perfect for me right now, but I'm enjoying my life in spite of it all.
Though this is technically my first post on this blog, I have already posted some things I've written and previously posted on Facebook or my website. I will no longer be updating in either of those places. So, be sure to check here if you wanna know what's up.
Many people have asked when I'll be going to Chicago for the transplant. I'm disappointed to tell you that I STILL don't have a date. However, we expect it to be in the next 3 to 4 weeks. For me, that's plenty soon! Besides, I'll just use this time to squeeze in some more fun, make a few memories and have a couple more donuts!
Beth, I don't know if you use twitter or not but that may be an easy way to connect to people that have or are interested in scleroderma. I have done a "scleroderma" search and many users popped up. May be a good avenue.
ReplyDeleteGirl I am glad you are taking this opportunity to post and let out what you are feeling. You tell em girl....you tell em.
ReplyDeleteHang in there, Beth...I think it is wonderful you posted this. My husband had a liver transplant five years ago, so we know what you are going through; it is a scarey adventure; but like you said, you cling to all the good vibes, people, love, etc. Know how many people are behind you praying and pushing you closer to feeling good again!!!
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